A register of patients suffering from rare genetic diseases is being created in Uzbekistan
09/09/2019 09:48
A register of patients suffering from rare genetic diseases is being created in Uzbekistan
09/09/2019 09:48
Tashkent, Uzbekistan (UzDaily.com) -- The President’s resolution “On measures to further improve medical and social care for children with rare (orphanic) and other genetic diseases” was adopted on 7 September 2019.
The resolution defines the main priority areas for the provision of medical and social assistance to children with rare (orphanic) and other genetic diseases.
Also, the Program of measures for organizing the provision of medical and social assistance to children with rare (orphan) and other genetic diseases for 2019–2024 was approved.
According to the Program, a total of 424.6 billion soums and $548,000 are provided for the diagnosis and treatment of these diseases in children.
It was determined that the import of medical devices used to treat rare (orphan) diseases is carried out without state registration according to the list approved by the Ministry of Health.
Until 1 January 2020, the National Register of Patients Suffering from Rare (Orphan) and Other Hereditary Genetic Diseases will be organized.
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